Penny’s Story

Penny’s Story

Hi, my name is Lindsey. That’s my daughter on the bed with my mum Penny. Mum has Multiple Sclerosis, that hideous disease that disrupts the communication between our brain and our body, so that eventually we have a fully functioning brain but our body shuts down completely.

Mum has the progressive type of this disease, so while we are fortunate to have her in our lives for longer, the relentless deterioration of movement and the constant pain is difficult to watch in someone you love.

Especially someone who is so full of life as my mother. She has always been such an independent and inspirational woman. Growing up with her was a lot of fun. Even though she worked full time as a teacher, she was very active and played netball and badminton.

She was also very musical, playing the piano all the time. And she loved nothing more than to get us kids involved in sport and music, along with sailing, swimming and always, just having a good time as a family.

Even now, mum is so strong and never complains about anything, even when she’s having a tough time and in pain. She always makes sure her MS has as little impact on us as possible. But it’s hard on everyone. Whether it’s going to a café and finding she isn’t able to access the table easily or get to the toilet, or facing the humiliation of having everyone speak to me and not her simply because she’s in a wheelchair.

Reading our story, you can understand why our whole family is so motivated to be associated with the Eyewall Foundation and their funding of new research. You see, the particular type of MS my mum has is seeing very little research progress. My mother’s management plan, for example, hasn’t changed in the past 20 years! The investment in research is so low that although mum is more than willing to participate in clinical trials for better treatments, she has never had the opportunity.

What’s more, MS is still very much a mystery disease, with no answers to why someone gets it and why others don’t. Finding out the answers to questions like these would be amazing. We hope that Eyewall’s work to sponsor full time researchers and invest in new programmes will help make that happen.

Our medical research

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

What we’re trying to achieve.

We’re a young foundation with big dreams. Our funding is aimed at a number of critical areas of vmedical research.

Meet the researchers.

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

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Belinda’s Story

Belinda's Story

Dr Belinda Kaskow joined our medical research team in 2021. Belinda’s story, and her journey to join us, is remarkable. And incredibly moving. Her passion to see diseases such as Multiple Sclerosis and cancer eradicated from the human race forever has a very personal motive.

Belinda completed her Ph.D. at the University of Western Australia and then moved to Boston, USA to conduct postdoctoral research into the causes and treatments for neurological diseases.

She worked at some of the world’s most renowned medical organisations, including the Ann Romney Centre for Neurologic Diseases at Brigham and Women’s Hospital, Harvard Medical School and the Broad institute of MIT and Harvard.

It was while overseas working with respected neurologists Dr. Philip De Jager and Dr. Howard Weiner and immunology researcher Dr. Clare Baecher-Allan, that her immediate family experienced the tragedy of cancer. Not once, but four times.

You can imagine how this experience spurred on Belinda’s lifelong desire to bring all her international expertise back to the West Australian scientific community. This goal was finally made possible in 2021 when the Eyewall Foundation sponsored her appointment as a Post-Doctoral Scientist at the Perron Institute.

Belinda is now living in Perth with her husband and two young children and is continuing her postdoctoral research at the Perron Institute. The unknowns faced by her family members drive Belinda’s ongoing passion to solve the riddle of incurable neurological disease in the hopes to help individuals and their loved ones everywhere.

Our medical research

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

What we’re trying to achieve.

We’re a young foundation with big dreams. Our funding is aimed at a number of critical areas of medical research.

Meet the researchers.

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

Read More

Bo·Be & Rapaport

Bo·Be & Rapaport

Eyewall’s jewellery brand Bo·Be is supported
by the world-renowned Rapaport Group.

Established in 1976, the Rapaport Group is an international network of companies supporting the development of fair, transparent, efficient, and competitive diamond and jewelry markets.

Rapaport shares Eyewall’s ambition to use business to create a better world, not just make money. They support socially-conscious, ethical jewellery trading and are leading lights in the promotion of human rights throughout the global industry.

With over 20,000 clients in 118 countries the Rapaport Group is an innovative force for positive change. Their information and trading services have revolutionized the diamond industry by creating unprecedented pricing and availability transparency across global markets.

Recently, the legendary Rapaport Magazine has featured Eyewall and its fund-raising jewellery brand Bo·Be. Several of our pieces have been featured on their website as their Jewel Of The Week (including our beloved Dreamcatcher, pictured).

We are proud to be associated – and aligned – with the Rapaport organisation.

Direct Donation.

If any of these stories have resonated with you, why not support us directly through a personal or corporate donation. Donations over $5 are tax deductable and every dollar will help us fund world-changing medical research.

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The Story of Zoe’s Mum.

The Story of Zoe’s Mum.

“My beautiful mum Jean was a strong, independent and healthy woman when she was diagnosed with Alzheimer’s Disease in 2008. She was 56.

Although Mum accepted her diagnosis with a great deal of dignity and grace given the future she faced, the news was devastating for our whole family. The outlook for her ever experiencing any sort of recovery was essentially without hope.

Knowing in advance the devastation this disease brings upon the sufferer – and their loved ones – must have been frightening and distressing for her. Alzheimer’s is so much more than a loss of memory, particularly in the young and otherwise healthy.

Fortunately, while not without its significant challenges, particularly for Dad, Mum was able to live at home for many years as her illness progressed. Compared to many people, Mum had a very good quality of life and continued to enjoy many of life’s simple pleasures, like a cup of coffee by the ocean, listening to The Beatles or completing a Sudoku.
However, the day inevitably arrived where Mum could no longer remain safely at home and had to move into professional care. Some truly awful times followed when the full extent of the disease devastated her mind and body. Until the end, Dad continued to bring her a coffee every day and play her favourite music. Alzheimer’s destroys a lot, but not his love for her.

In 2017 and at the age of just 65, Mum passed away, only a few weeks shy of her granddaughter Phoebe’s first birthday. For Phoebe, the memories of her Grandma Jean are what we tell her, in the little stories and sayings and quirks that make a person who they are, and that hint to the values they hold. She will grow up remembering her Grandma Jean as a strong, intelligent and independent woman who was courageous and gracious in the face of her decline, and who loved and cared for her family above all else.

Way back at the start of this tragic journey, Mum knew there was little that could be done to treat or delay the consequences of the disease. Early in her diagnosis, however, she agreed without hesitation to participate in medical research programs, including drug trials and organ donation. She understood that her contribution, however small, would in some way contribute to lessening the suffering of others. So that some day, someone may not have to suffer as she did. As we all did.”

This is why Eyewall exists. Thanks to Zoe Kelsey. (Nee Howe)

Our medical research

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

What we’re trying to achieve.

We’re a young foundation with big dreams. Our funding is aimed at a number of critical areas of vmedical research.

Meet the researchers.

The research we’re funding is undertaken in Western Australia and by a global network of medical practitioners. Take a look.

Read More

Raising money to lower suffering.

Raising money to lower suffering.

Redkite do an amazing job helping families impacted by childhood cancer. We helped them raise funds with a donation from our not-for-profit jewellery brand Bo-Be.

Eyewall’s purpose is to create a better world through better spending. So when Redkite got in touch and said they were raising money to help the families of children suffering from cancer, we wanted to be a part.

Our idea was a Mother’s Day Raffle, with first prize being a set of Bo-Be jewellery worth over $75,000. One lucky mum received a beautiful set of diamond jewellery and Redkite received a big funding boost so that many more families could receive the practical help and emotional support they needed to get their child through cancer treatment. We think that’s a great win-win.

As one of our fundraising enterprises, Bo-Be is all about making jewellery more meaningful. We think jewellery should be a symbol for love and family, not just how much money you have. And the set we chose for the raffle is a great example. It was from our Dreaming Collection, a range of designs that reflect the Eyewall Foundation’s dream of a world where neurological diseases don’t rob us of our loved ones before their time. A dream shared by everyone at Redkite too.

Find out more about Redkite.

Every day, three Australian families are told their child has cancer. And when a child has cancer, almost every aspect of normal family life is affected. Redkite is a wonderful charity that provides emotional, financial, and practical support for families going through this horrible, unfair experience. And they’ve been doing it for 35 years, becoming Australia’s most dedicated support network for families going through the difficult journey of childhood cancer. We’re proud to partner these guys and help fund their amazing work.

to learn more

about Redkite (and maybe even donate!).

to learn more about Redkite (and maybe even donate!).

More about us.

Like to help the Eyewall Foundation fund world-changing medical research? Take a look at our purposeful enterprises. These creative little companies are the economic engines driving our fundraising efforts and delivering “a better world through better spending”.​

bo be logo White sml

We’re making jewellery more meaningful. Firstly, by designing cool rings, necklaces, brooches and more with a deeper meaning to them than just how they look or how much they're worth. Each one has a very human story to tell. And secondly, by giving 100% of the profits to the amazing medical people and institutions researching cures for neurological diseases. People trendier than us call that “conscious consumption”. We just think it makes beautiful sense.

ACP logo white

This amazing little enterprise is launching soon and is designed to promote both sustainability and charity. It works like this: we’re sourcing incredible designer-label clothing from the wealthy, then getting fashion and design students to repurpose them into lifestyle accessories that people at every level of society can afford to buy. Things like handbags, wallets, placemats, bookmarks, and so on. With all the money going to fund medical research. We love it and know you will too. Stay tuned for launch announcements.

CFC logo white

This is another clever enterprise that’s going to be a real win-win for consumers and society. It’s a sort of environmentally-conscious gifting idea, where we collect unwanted vintage crockery and get talented, altruistic artisans to break it down and create new homewares that people can buy for themselves or as gifts. And again, all the profits go directly to medical research. It’s just like the Aussie Couture Project, really, but with porcelain and fine china!

Direct Donation.

If any of these stories have resonated with you, why not support us directly through a personal or corporate donation. Donations over $5 are tax deductable and every dollar will help us fund world-changing medical research.

Read More

Building a better world is an art.

Building a better world is an art.

We’ve partnered with The Lester Prize, a national portraiture competition with a belief in human understanding over vacuous fashion (we love that).

The Lester Prize is one of Australia’s foremost portraiture prizes, awarded to artists who produce distinguished works that capture the meaning of ‘them’, ‘me’, and ‘us’. This ambition really aligns with our own belief that when individuals unify around a common goal, they can change the world.

We’ve also seen that art can be a genuine contributor to a world that inspires and heals the human mind. Art therapies, for example, have long been used to enhance the lives of patients suffering from neurological disorders, providing an outlet for self-expression and enhancing their quality of life. Than connects directly to our ambition to cure some of the world’s nastiest neurological diseases like Alzheimer’s and Parkinson’s. So bring on the art, folks.

More about The Lester Prize.

The award aims to inspire Australian artists, empowering them to continue producing thought-provoking, and envelope-pushing artworks. We love their manifesto:

  • It is not one point-of-view, one tone nor one hue.
  • The Lester Prize exhibits all our traits—the heroic, the despicable, the humble, the deplorable, the principled and the fallen.
    When you look upon these portraits of others, you can’t help but see yourself reflected.
  • The Lester Prize captures what it means to be ‘them’, to be ‘me’ and to be ‘us’.
  • With this ancient continent behind it, The Lester Prize looks out while welcoming the world in.
  • It is for portraiture that comes from an unexpected place, but can speak to all.
  • It is for the elevation of the artist but against vacuous celebrity.
  • It is for quality irrespective of style.
  • It is for insight over fashion.
  • It builds reputations, not just venerates those who already have one.
  • This is what makes The Lester Prize the fresh face of portraiture.

to find out more.

More about us.

Like to help the Eyewall Foundation fund world-changing medical research? Take a look at our purposeful enterprises. These creative little companies are the economic engines driving our fundraising efforts and delivering “a better world through better spending”.​

bo be logo White sml

We’re making jewellery more meaningful. Firstly, by designing cool rings, necklaces, brooches and more with a deeper meaning to them than just how they look or how much they're worth. Each one has a very human story to tell. And secondly, by giving 100% of the profits to the amazing medical people and institutions researching cures for neurological diseases. People trendier than us call that “conscious consumption”. We just think it makes beautiful sense.

ACP logo white

This amazing little enterprise is launching soon and is designed to promote both sustainability and charity. It works like this: we’re sourcing incredible designer-label clothing from the wealthy, then getting fashion and design students to repurpose them into lifestyle accessories that people at every level of society can afford to buy. Things like handbags, wallets, placemats, bookmarks, and so on. With all the money going to fund medical research. We love it and know you will too. Stay tuned for launch announcements.

CFC logo white

This is another clever enterprise that’s going to be a real win-win for consumers and society. It’s a sort of environmentally-conscious gifting idea, where we collect unwanted vintage crockery and get talented, altruistic artisans to break it down and create new homewares that people can buy for themselves or as gifts. And again, all the profits go directly to medical research. It’s just like the Aussie Couture Project, really, but with porcelain and fine china!

Direct Donation.

If any of these stories have resonated with you, why not support us directly through a personal or corporate donation. Donations over $5 are tax deductable and every dollar will help us fund world-changing medical research.

Read More